Thursday, December 28, 2017

Legally Crazy; Medications and a Carrie Fisher Quote

Hello My Dear One,

Well, we've made it through the Chanukah and Christmas holidays, and it's almost a new year on the Western calendar. I never had a real meltdown, so that was nice, and I didn't curl up in the fetal position too many times, also nice. But I did suffer from the increased dosage of the medication I added in several months ago. Three months and three milligrams into it and I've successively gotten sleepier and more fatigued with each passing day. I've had a few "good" days here and there filled with energy and positive feelings, but mostly I've been flat. I haven't been depressed per se, or even remotely suicidal, just weighted down by the heaviness of medication.

Now, I don't want you to think that I've gone and changed things without consulting with my provider first, because I did consult with the appropriate people. I have chosen to switch when I take a medication from morning to night in an attempt to use the sleepiness to my advantage. You see, after about 10 to 12 hours of having taken the med I begin to feel happy, relaxed, and ready to get on with my day. Unfortunately, this is usually around 8:00 pm (20:00 hours) and that's not particularly conducive to my life. If I worked a late shift I suppose this would be okay, but since I don't it really doesn't help. And as an insulin dependent diabetic, sleeping all day and night doesn't really help my overall health either.

So, onto the experiment, and a hope for a little more energy during the day. I've skipped my AM dose today in order to try this, yes, it's the first day and I don't know what will happen, but I'll let you know in a week. But I wanted to share this more because I want to be proactive about what's going on in my life. I want to let you know that meds help, but they have side effects that can leave you wondering if the previous instability was better than the current stability. Which is exactly why people with Bipolar Disorder go off their meds. Either we feel better because of them and question why we need them in the first place or we feel rotten on them, read normal, and stop taking the chemical help we've been receiving. It's a perpetual loop of positive and negative feedback where it's almost impossible to know the truth. Sometimes it's best to look to family, friends, and other loved ones for perspective, and to trust them that they can see who we are even when we're not ourselves. So that they can see who I am even when I am not myself.

There is a marvelous quote from the late and amazing Carrie Fisher:
     ”One of the things that baffles me (and there are quite a few) is how there can be so much lingering stigma with regards to mental illness, specifically bipolar disorder. In my opinion, living with manic depression takes a tremendous amount of balls. ... At times, being bipolar can be an all-consuming challenge, requiring a lot of stamina and even more courage, so if you’re living with this illness and functioning at all, it’s something to be proud of, not ashamed of.” 

I miss her. I miss her because she was a voice for those of us with this fatal disease. Yes, Bipolar Disorder is fatal, but we can manage it for as long as possible with support from those around us and from those who are willing to speak out about it. 

We can live with it, medicate it, use therapy on it, use acupuncture, other healing options, and talk to it with our own voices even when it feels ridiculous to do so. We can live even as we are dying, and that takes a lot of courage and stamina. 

Thank you for bringing perspective on this journey.

Be well, love your neighbor as you love yourself, and remember to actually love yourself.

Ari


Monday, December 11, 2017

Legally Crazy; Transgender Thankfulness

Hello My Dear One,

I remember reading that George Burns once said something about when a show got too serious you needed to tap dance for the audience to lighten things up. I think this might be one of those times in my own story. So, I'll tap dance for you a bit, brighten the mood, and show my gratitude for the life I have.

I've always been known as the funny guy - hard to believe if you just go by my writing - but I guess that's how I've dealt with all of the bad stuff over the years. I crack jokes, I make bad puns, I laugh at inappropriate things and at inappropriate times. I like to push the envelope of what's funny and what's potentially offensive. I've always enjoyed a good roast, the insult kind and the beef, as well as a side of mashed metaphors with comedic gravy. I learned the dirtiest jokes in seminary and from pastors. I think the pressure of being responsible for people's spiritual guidance can get the better of any of us. And for all of that I'm thankful.

My family is a never ending source of material. I'm thankful for that on a daily basis. Although I suspect they are not as thankful for this as I am. A story comes to mind of driving to the movies with my wife and then young sons who were aged four and two, and the comedy that followed. I'm not talking about the movie. You see, there are cows everywhere around these parts, and as we went by a pasture each occupant of the car made a noise. I said, "Moo." My wife said, "Moo." The four year old said, "Moo." And then we waited for the two year old, who pausing for a beat, said, "Beep!" It was a moment that solidified his place as the comedian in the family and a disdain by his brother for what appeared to be a distinct lack of intelligence. I suspect it had more to do with his distractibility than IQ, but when the adults laughed, he knew he'd struck gold. He's been the other funny guy ever since. Again, I am eternally grateful for my family.

Life itself is funny. Sometimes it doesn't always seem that way. But our "First World" problems of spilled lattes, lack of paper towels, rotten peaches, data overages, crappy wifi, and furniture that's too big for the spare bedroom are laughable as much as they are depressing. We have millions of things to be thankful for everyday, billions really when we consider that there are more than 6 billion individual journeys going on around us.

But what about being transgender, of having Gender Dysphoria, of being inherently different every day of my life? How am I thankful for that? How I am thankful for being a target of hate and intolerance? What makes it okay to get up in the morning, knowing that I can be attacked simply for being who I am?

It is remarkably easy to be grateful for being transgender. Every day that I get up I am able to live as my authentic self. I am able to live. Were it not for having a diagnosis of Gender Dysphoria, I never would've received the treatment I needed to become the man I am today. There would be no Ari, no spouse, no children, no blog, there would be nothing. But because of who I am, I have all of that and so much more. Including a sense of humor about what it means to walk through this world differently and different.

So, let's end here with an octopus joke:


Most people think an octopus has 8 legs.
Actually, they have 6 legs and 2 arms. 
How can you tell which are the arms?
Hit it on the head. 
The two that go up to the head when he says “Owwww” are his arms.

Anyway...thanks for being on this journey, no matter what.

Be well, love your neighbor as you love yourself, and remember to actually love yourself.

- Ari